Focus group | Challenge | Solutions achieved (Selected) |
---|---|---|
Awareness | • Low public awareness of retinoblastoma | • Posters, Radio, TV, Print Media |
• Low medical/healthcare professional awareness of retinoblastoma | • Workshops, Maternal Child Health Booklet | |
Medical Care | • Lack of data on retinoblastoma patient survival, referral, outcomes | • Research |
• Delayed referral of patients | • Consensus Best Practice Guidelines, Research | |
• Poor availability of specialist care | • Training, Consensus Best Practice Guidelines | |
• Delayed and inaccurate pathology | • RbCoLab - Health Service Delivery Innovation | |
Family Support | • Socioeconomic challenges in accessing healthcare | • Cycle of Light |
• Families have trouble coping with and understanding retinoblastoma | • Child Life Training Program | |
Resource Mobilization | • Little funding for programmatic support | • Grants, Fundraisers |
• Difficult to mobilize support and strategic partnerships for retinoblastoma | • KNRbS meetings and invited guests |