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Table 2 KNRbS Task Forces & Achievements

From: Achieving optimal cancer outcomes in East Africa through multidisciplinary partnership: a case study of the Kenyan National Retinoblastoma Strategy group

Focus group

Challenge

Solutions achieved (Selected)

Awareness

• Low public awareness of retinoblastoma

• Posters, Radio, TV, Print Media

• Low medical/healthcare professional awareness of retinoblastoma

• Workshops, Maternal Child Health Booklet

Medical Care

• Lack of data on retinoblastoma patient survival, referral, outcomes

• Research

• Delayed referral of patients

• Consensus Best Practice Guidelines, Research

• Poor availability of specialist care

• Training, Consensus Best Practice Guidelines

• Delayed and inaccurate pathology

• RbCoLab - Health Service Delivery Innovation

Family Support

• Socioeconomic challenges in accessing healthcare

• Cycle of Light

• Families have trouble coping with and understanding retinoblastoma

• Child Life Training Program

Resource Mobilization

• Little funding for programmatic support

• Grants, Fundraisers

• Difficult to mobilize support and strategic partnerships for retinoblastoma

• KNRbS meetings and invited guests