Table 1 Annual KNRbS Meetings and Outcomes

1

2008

Nairobi

3

58

Planning

• Identify current challenges and priorities in retinoblastoma management

2

2009

Mombasa

3

68

Planning

• Create 5 year plan for KNRbS

Ophthalmology Society of East Africa: Access to services for the blind

• Update on progress with respect to 4 common challenges

• Discussion of national collaborative laboratory pathology service (RbCoLab)

• Introduction to electronic medical database (eCancerCare-Retinoblastoma)

3

2010

Nairobi

3

42

Capacity Building

• Discussion of adoption of KNRbS guidelines

Kenyan Cancer Association (KENCASA): Kenya Cancer Bill overview

• Focus on electronic medical database

4

2011

Mombasa

3

42

Capacity Building

• Skills enhancement: surgical techniques; child life practices

Anthropologist: Managing cancer in a Kenyan Hospital

• Knowledge enhancement: retinoblastoma genetics; indications for chemotherapy; grant writing

US Journalist: UN Summit on Non Communicable Diseases

Kenya Society for the Blind: Coping with Blindness

5

2012

Nairobi

2 + 1 (workshop preceding)

60

Capacity Building

• Conference preceded by 1 day clinical skills workshop

• Focus on long term sustainability of KNRbS

• Discussion of the adoption of the retinoblastoma guidelines

6

2013

Eldoret

2 + 1 (workshop preceding)

80

Research, Innovation & Implementation

• Conference preceded by 1 day clinical skills workshop

Christian Blind Mission: Implementation of Guidelines

• Focus on retinoblastoma genetics and pathology

East African Strategies - Uganda, Ethiopia

• Discussion of logistics of guideline implementation

7

2014

Nairobi

3

60

Research, Innovation & Implementation

• Focus on research

UoN Research Services

• Introduction to international retinoblastoma group (One RB World)

Technology: IT and mobiles in health services and management